Sarah Bingham, a 39-year-old mother from Weston-super-Mare, UK, is grappling with the emotional turmoil of her son Caleb's diagnosis of Friedreich's ataxia, a rare genetic condition that could shorten his life expectancy to 35 years. Caleb, who suffered severe health issues as an infant, including bacterial meningitis, faced significant developmental challenges, including a late autism diagnosis. The revelation of his genetic condition came only after Sarah discovered that a genetic test conducted in 2020 had identified a chromosome seven deletion but was never communicated to her. This oversight has left her feeling guilty for having three other children, Phoebe, Xavier, and Felicity-Jayne, who are now undergoing testing for the same genetic condition, as both parents are carriers. The emotional burden of potentially losing all her children before they reach adulthood weighs heavily on Sarah, who is also managing Caleb's daily care and seeking therapy to cope with the trauma of his diagnosis. As she prepares for the results of her other children's tests, Sarah is also trying to create positive experiences for Caleb, including a bucket list of activities to enjoy together.