Parents Demand Better Support for Children with Selective Mutism in West Sussex
Parents say 'no support' for children who can't speak
The Bbc
Image: The Bbc
Parents in West Sussex express frustration over the lack of support for children with selective mutism, a severe anxiety disorder affecting communication. Many have resorted to private assessments and therapies due to inadequate local resources. A petition is underway to demand a clear support pathway from the local council and NHS.
- 01Parents report feeling 'angry' and 'frustrated' due to the lack of support for children with selective mutism from West Sussex County Council and NHS.
- 02Joanna Stephenson's daughter has never received support for her condition, leading to blocked access to education.
- 03Many parents are forced to pay for private diagnoses and therapies, with costs exceeding £2,000 for some.
- 04Catherine Bates from the Selective Mutism Information and Research Association emphasizes the need for early diagnosis and intervention.
- 05The local council and NHS have acknowledged the issue and are reviewing support pathways for affected families.
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Parents in West Sussex are voicing their frustration over the lack of support for children suffering from selective mutism, a severe anxiety disorder that inhibits speech in certain social situations. Joanna Stephenson, whose daughter Scarlett is affected, has launched an online petition urging the local council and NHS to create a clear support pathway for families. Many parents, like Samantha Boseley and Jenni Rudd, have resorted to private assessments and therapies, incurring significant costs, as local resources are insufficient. The absence of early intervention is concerning, as untreated selective mutism can lead to children being labeled as unable to speak, further isolating them. Catherine Bates, a trustee for the Selective Mutism Information and Research Association, highlights that some professionals still misunderstand the condition, viewing it as a choice rather than a disorder. In response to these concerns, the West Sussex County Council and NHS Surrey and Sussex Integrated Care Board have stated they are working to improve support and coordination among services.
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The lack of support for children with selective mutism significantly affects their education and social interactions.
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