Nova Scotia Woman Walks 200 km to Raise Awareness for Huntington’s Disease
Nova Scotia woman walks 200 km to raise awareness for rare disease after brother’s diagnosis

Image: Ctv News
Brianna Voss is walking 200 km from Lower Sackville to Amherst, Nova Scotia, to raise awareness and funds for Huntington's disease after her brother Connor was diagnosed with juvenile Huntington's disease. Her goal is to raise $50,000 for the Huntington Society of Canada, highlighting the impact of this rare genetic condition on families.
- 01Brianna Voss's brother, Connor, was diagnosed with juvenile Huntington's disease, which affects children and teens under 20.
- 02Voss aims to raise $50,000 for the Huntington Society of Canada, currently at 40% of her goal.
- 03Juvenile Huntington's disease accounts for about 5% of all Huntington's disease cases in Canada.
- 04Voss's family has a history of Huntington's disease, with her father passing away from it in 2019.
- 05The symptoms of juvenile Huntington's disease can lead to rapid cognitive and physical decline, often misdiagnosed initially.
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Brianna Voss is undertaking a 200 km walk from Lower Sackville to Amherst, Nova Scotia, to raise awareness and funds for Huntington’s disease after her brother, Connor, was diagnosed with juvenile Huntington's disease. The disease, which affects one in 7,000 Canadians, has significantly impacted Voss's family, with her father dying from it in 2019. Connor began showing symptoms at a young age, which were initially misdiagnosed as behavioral issues. Voss aims to raise $50,000 for the Huntington Society of Canada (HSC) to support research and advocacy for the disease. As of now, she has raised 40% of her goal. Voss emphasizes the importance of community support, sharing that local residents have been enthusiastic about her cause, contributing donations, and spreading awareness. She acknowledges the emotional challenges of visiting her brother, who has undergone a rapid decline in health due to the disease, but remains committed to being an advocate for those affected by Huntington's disease. Voss encourages others to approach testing and diagnosis with kindness and to prioritize mental well-being.
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The walk aims to raise awareness and funds for Huntington's disease, impacting local communities by educating them about the condition.
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